Environment which right now occupies an important part of discussions concerning Issues related with environment hazards etc in our daily lives hence its no wonder that the world community adopted June 5th as World environment day to address issues related to environment hazards,etc to everyone.

World environment day was conducted in India (Hyderabad) in a special way by planting of tree saplings in honor of Ataxia affected community from (SAMAG) India, the planting was done in a unique way as on each persons name the plants were being planted which symbolizes hope and Love and also generates the much needed awareness on Ataxia in Indian society.

This event was sponsored by Sri Narayani peetam Incoordination with Shera services (Hyderabad), (NAF) was also represented here by us and its activities was also shared among members who attended this event, Seek a miracle Ataxia group extends our sincere thanks to the event sponsors and a special mention about our young volunteers led by Satish Kumar, Shalini, Ramya, Jyotsana, Chandana,Srinivas,Sai kiran,Laxmi kanth,Govardhan and Vishnu who did a fabulous job with their services without whom this event couldn’t have been a success, Once again we convey our heartful thanks to our volunteers for their kind services.

IAAD meet started with the Indian traditional Lamp lighting by the eminent honorable chief guests - Mr. Mankena Srinivas Reddy (Chairman MIRD), Mr. Raja Reddy (Educationalist), Mr. Suresh (Nobel NGO), Mr. Dr. John Thomas (Medical Adviser - SAMAG).

The welcome note was given by Mr. Balakrishnan (SAMAG volunteer). Inviting honorable chief guest Mr.Mankena Srinivas Reddy to speak about the initiative.

Mr.Mankena Srinivas Reddy said SAMAG is one the best forums for spreading awareness and working towards welfare of Ataxians in India and later signing the proclamation recognizing International Ataxia Awareness Day, on September 25th . Followed by his speech, he proclaimed Mr. Chandu George (President of SAMAG) as the Andhra Pradesh (Indian State) Convener for Ataxia Group, as one of the wings under his Organization. He promised to take this initiative to all India level and bring the ideas of providing resources to the notice of higher dignitaries.

Dr. John Thomas shared information on what Ataxia is and how it can be identified and other handful of advises on managing life with it. He even stressed on a point of setting up a SAMAG Research Center and Rehabilitation Center to carry out research activities and come up with a cure, as well as to rehabilitate the affected persons to lead an better life independently.

Out of their experience, Mr. Chandu George and Ms. Nirmala shared their day to day activities and suggested few simple exercises for the Ataxians to make life better, furthermore the latest Research activities, Information and programmes being carried out by National Ataxia Foundation(USA) and other worldwide Ataxia organizations was discussed and shared with guests. It was a good note for the IAAD meet and an inspiring aspect for SAMAG that motivates us to disseminate a message across all Ataxians on Ataxia awareness and make them come out of their closed barriers.

The concluding note was given by Mr. Satish (SAMAG volunteer). He briefed about all the SAMAG activities that are carried out to promote awareness on Ataxia and explained the needs to achieve the objectives of SAMAG.

Finally the vote of thanks was given by Mr. George (Senior) to the chief guests and other associates for giving an opportunity to conduct this IAAD meet and taking their valuable time out of their busy schedule and more importantly for sharing their views on the occasion of this meet. He also thanked our SAMAG team for their collective efforts in making this event a grand success.

Please click here to view all the pics of our IAAD- 2008 meet.

St.Xavier's Church in India under the Parish Priest, Reverend, Vedharatnam invited SAMAG to share awareness on Ataxia among its community on August 31, 2008. SEEK A MIRACLE ATAXIA GROUP (India), which is a support group working for the cause Ataxia, in India, with its objectives as raising awareness to provide information on Ataxia and to work for the welfare of Ataxia victims in India.

The Ataxia awareness programme started with Priest Reverend, Vedharatnam inviting Chandu George of SAMAG to share words on Ataxia. First introduction was given by George (Senior) Parent of Chandu George (FAer). Later the Ataxia awareness meeting progressed with Chandu George explaining to members, What Ataxia is, such as its symptoms, causes and types of Ataxia, etc. and asking community members to come forward and support the Ataxia cause and endorse the views of SAMAG to share help for Ataxia members in India.

The meeting ended on a pleasant note with the Priest, Vedharatnam asking community members to contact and support SAMAG in its Ataxia cause and also other disability related issues, all the community members pledged to support awareness on Ataxia and support SAMAG in pursuing its future objectives.

ST.John’s Church in India under the Parish Priest, Pious Thomas Invited SAMAG to share awareness on Ataxia among the community on august 24, 2008, SEEK A MIRACLE ATAXIA GROUP (India) which is an support group working for the cause Ataxia in India, with its objectives as raising awareness to providing information on Ataxia and to work for welfare of Ataxia victims in India.

The Ataxia awareness Programme started with a Introduction from parish priest Pious Thomas who first asked the members “Has anyone heard about ATAXIA” he asked thrice the silence itself explained that no one was aware about it, then Priest Pious Thomas invited Chandu George of SAMAG to share words on Ataxia, Later the Ataxia awareness meeting progressed with Chandu George explaining to members what Ataxia is, such as its symtoms,causes,and types of Ataxia etc to asking community members to come forward and support the Ataxia cause and endorse the views of SAMAG to share help for Ataxia members in India.

The meeting ended on an emphatic note by the community members’ ad parish priest enthusiastically and eagerly accepting the awareness on Ataxia and joined hands to support SAMAG.

A warm welcome to everyone, I wish to share with everyone about the Ataxia awareness programme I managed to conduct along with my sister we both are (Faers) In last week of April, The programme was covered by Indian Media and was later telecasted in TV network across India.

The message I and my sister conveyed was raising awareness on Ataxia which is not heard or known much in India, also we conveyed the message “there is life in Ataxia” and furthermore my sisters holistic approach message drew lots of attention, praise and admiration for saying “First we should accept ourselves, then others will accept u” later we discussed about importance for society to come forward and work and encourage for the welfare of ataxians also we discussed on current Research on ataxia going on , Finally the programme ended on a happy note as the media emphatically said (after being with them we can say this means LIFE IS BEATIFULL) The programme was well received and appreciated by many patients, their parents, carers, Indian public who immediately queried about us from the TV channel which telecasted it. Since our idea was to pass on the message to people from remote corners in Andhra Pradesh (India) so the programme was spoken in Indian local language (Telugu) which is non-English

Media Interviews Chandu George (SAMAG)
To make this programme available to viewers everywhere I have posted this video in 2 parts in YOUTUBE Video sharing Network, To view this video online please visit the following links,